By Melanie Sanchez – TACA Mom
My son Andrew is 15 1/2 years old. He is non verbal, has autism, and a lovely contagious smile. He had a brief “sleep deprived” EEG done right after diagnosis when he was around 3 years old. It lasted less than an hour and hardly seemed worth the time and effort. At the time of the first EEG, he fought the sedation for 4 hours. It seemed like another worthless test in a sea of worthless tests. No doctor had ever suggested a follow up EEG.
Fast forward 12 years, he had an EEG done with a caring staff revealing seizure activity all day, all night and in every area of his brain. He has probably been experiencing it for a long time as he cannot sleep and his symptoms have not been as responsive to other treatments as we had hoped. My heart aches that a proper 24 hour EEG was never suggested by his doctors. I am leaving those feelings behind because I am hopeful that during this 15th year of life I will hear his voice. I am hopeful that he will finally be able to sleep, show me his strengths and his true potential. Since his diagnosis, I have continued to look for answers for my beautiful son. I share our story to inspire others into seeking treatment and to demonstrate that hope is ALIVE and well at my house!